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| Friends of CF |
Make A Donation to Friends of CF
Your Support Will Help Add Tomorrows Every Day
We are a group of friends who have joined together to help fund and find a cure for Cystic Fibrosis (CF). We are asking for your help in making this campaign successful by a donation of funding, services, prizes or help in anyway that you can.
Our goal is to obtain funds for the Cystic Fibrosis Foundation. We will be doing this by raffling donated quality items to the general public and requesting cash donations to help fund our endeavor.
We are a class 501-c3 organization. Our Tax ID # is 27-1653500. The Cystic Fibrosis Foundation (CFF) is a non-profit, tax-exempt organization whose primary mission is to find a control and a cure for cystic fibrosis. CFF is the only organization dedicated solely to the fight against cystic fibrosis. Contributions Are 100% Tax Deductible.
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| Cystic Fibrosis Foundation synopsis: “The Cystic Fibrosis Foundation was established in 1955 to assure the development of the means to cure and control Cystic Fibrosis and to improve the quality of life for those with the disease.”
“CF is a progressive disease. As young people with CF get older, they become more vulnerable to devastating lung disease. Unless we find a cure, at least one person with CF will continue to die every day.”
“When the Cystic Fibrosis Foundation began over 50 years ago, most children with CF died before they finished grade school. Today, thanks to extraordinary medical advancements made possible by generous supporters like you, many people with CF are living into their 30’s and 40’s and beyond.”
The Cystic Fibrosis Foundation needs your help…
Learn more about Cystic Fibrosis at www.cff.org/
Cystic Fibrosis is no longer considered exclusively a “childhood” disease and the need for raising awareness about the disease and our increasing adult population is essential. Please join our fight by raising cystic fibrosis awareness within your community. Encourage others to learn more about cystic fibrosis and the search for the cure.
According to the Cystic Fibrosis Foundation’s National Patient Registry, one half of all individuals with cystic fibrosis live to the age of 37; however, one half do not…
…if you suspect your child or grandchild may have cystic fibrosis, please act NOW! Consult with a pediatrician or your family doctor or contact your local cystic fibrosis care center. Early diagnosis may mean less damage to the lungs and digestive system, and therefore, a longer life expectancy for that individual. Further information or an update on the most current research can be obtained by calling the Cystic Fibrosis Foundation’s National Office at (866) 347-2345, or on the internet at www.cff.org/
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| The "65 Roses"® Story |
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65 Roses® is what some children with CF call their disease because the words are much easier for them to pronounce. Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary's 4-year old son, Richard, listened closely to his mother as she made each call. After several calls, Richard came into the room and told his Mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis. With some trepidation, Mary posed the question, "What am I working for, Richard?" "You are working for 65 Roses," he answered so sweetly. Mary was speechless. She went over to him and tenderly pressed his body to hers. He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for 65 Roses."
Since 1965, the term "65 Roses" has been used by children of all ages to describe their disease. But, making it easier to say, does not make CF any easier to live with. The "65 Roses" story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.
"65 Roses® " is a registered trademark of the Cystic Fibrosis Foundation. |
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Ruana Knife Works, Inc. |
Grizzly Liquor |
Iron Horse Brew Pub |
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TSI Health Sciences Inc. |
Noons Food Stores |
Muralt Family Foundation |
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- Cystic Fibrosis is a genetic disease affecting approximately 30,000 children and adults in the United States.
- Cystic Fibrosis causes the body to produce an abnormally thick, sticky mucus, due to the faulty transport of sodium and chloride (salt) within cells lining organs such as lungs and pancreas, to their outer surfaces. This abnormal mucus clogs the lungs and leads to life threatening lung infections.
- Approximately one in 3,900 children in the United States each year is born with cystic fibrosis. It is found in all racial and ethnic groups; however, it is more common among Caucasians. There are about 1,000 new cases of cystic fibrosis diagnosed each year. Most individuals are diagnosed by the age of three; but nearly 10 percent of all newly diagnosed cases are age 18 or older.
- One in 31 Americans (one in 28 Caucasians) – more than 10 million people – is an unknowing, symptomless carrier of one copy of the defective cystic fibrosis gene.
- An individual must inherit two defective copies of the cystic fibrosis gene – one from each parent – to have cystic fibrosis. There is a 25 percent chance that the child will have cystic fibrosis; 50 percent chance that the child will be a carrier; and a 25 percent chance the child will be a non-carrier.
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